Epidermolysis Bullosa Care in Scandinavia
The recessive forms of epidermolysis bullosa (EB) are common in Scandinavia, especially in the northern parts of Norway and Sweden. The daily care of EB in Scandinavia is organized around…
Epidermolysis Bullosa Care in Austria and the Epidermolysis Bullosa House Austria
The Epidermolysis Bullosa (EB) House Austria is a special unit for the multidisciplinary management of children and adults with EB. Major advances in EB care have been made possible by…
Epidermolysis Bullosa Care in Hungary
Hereditary EB is a rare skin disease that occurs worldwide and in all racial groups. There are currently 60 families affected and about 150 patients with EB under care in…
Epidermolysis Bullosa Care in Italy
Epidermolysis bullosa (EB) has officially been recognized as a rare disease in Italy. Regional reference centers for EB have been created during the past years. This article discusses the clinical…
Epidermolysis Bullosa Care in Germany
Until 2003, no structures existed in Germany for special care of patients with rare diseases, such as epidermolysis bullosa (EB). At that point, the Federal Ministry of Education and Research…
Epidermolysis Bullosa in France: Management in the National Reference Center for Genodermatosis
For more than 20 years, the department of dermatology in the Necker Enfants Malades Hospital (Paris) has been organizing the coordination of an epidermolysis bullosa–specific multidisciplinary management. The French Ministry…
Care of Epidermolysis Bullosa in Ireland
Advances in the medical care of epidermolysis bullosa (EB) have led to the development of National Service Centers for EB in many countries worldwide. The exemplary model of care to…
Epidermolysis Bullosa Care in the United Kingdom
There are approximately 5,000 people with epidermolysis bullosa (EB) in the United Kingdom. Since 2002, EB services in England have been nationally funded by the National Commissioning Group, which also…
Epidermolysis Bullosa Care in Mexico
Epidermolysis bullosa (EB) in Mexico continues to be a rare genodermatosis that is still unknown for most of the health care professionals in the country. The spirit of DebRA MEXICO…
Epidermolysis Bullosa Care in Canada
Based on the described prevalence and size of the population, approximately 300 to 500 patients with epidermolysis bullosa (EB) reside in Canada. There are specific challenges faced by patients and…
