India’s Kidney Belt and Medical Tourism: A Double-edged Sword




© Springer International Publishing Switzerland 2016
Ralf J. Jox, Galia Assadi and Georg Marckmann (eds.)Organ Transplantation in Times of Donor ShortageInternational Library of Ethics, Law, and the New Medicine5910.1007/978-3-319-16441-0_23


23. India’s Kidney Belt and Medical Tourism: A Double-edged Sword



Karen De Looze 


(1)
Centrum Leo Apostel, Vrije Universiteit Brussel, Brussels, Belgium

 



 

Karen De Looze





Karen De Looze

is an affiliate researcher at the Interdisciplinary Center Leo Apostel, Brussels Free University. She obtained her PhD in interdisciplinary studies with a study on post-mortem organ donation.

Her research investigated complexities surrounding post-mortem organ donation in India and drew lessons from local cases that are relevant globally. This research study included 19 months of fieldwork in India, and more specifically in Chennai, Varanasi and Vrindavan. Karen’s background is in social and cultural anthropology, cultural and developmental studies, and educational sciences. Her research interests include intercultural and comparative philosophy, bioethics, and end-of-life research.

 



23.1 Introduction


This chapter looks at some of the difficulties that arise in the process of implementing national policies that deal with organ donation and organ transplantation in local contexts. It particularly focuses on the pressures that emerge from international discourse on organ transplantation that limit the capacity of local governments to think and act outside of the box to address local circumstances. As a case in point I discuss the situation in India. This article is based on 18 months of fieldwork which I conducted in the country. The Transplantation of Human Organs Act (THOA) was implemented in India in 1994 with the aim to alleviate organ shortage. This Act has its roots in Universalist ethics based on Euro-American preferences that have sought to discourage organ sale and encourage cadaveric organ donation.1

Medical policy is tightly interwoven with an economic perspective that works through a discourse of scarcity. The logic of supply and demand, applied to matters of organ transfer, oversimplifies the context in which the THOA struggles to be implemented. Medical discourse and in particular the discourse on medical tourism connects organ transfer to profitability. Bearing this in mind, I will look at the double significance of India’s kidney belt, a region in South India and more specifically Tamil Nadu that is renowned for both medical tourism and organ sale.

Glossing over the complexities presented in this chapter, I will then discuss the tension between a culture-sensitive directive to render medical policy effective in the field, and certain restraints that arise from international pressures that are tightly interwoven with Universalist ethics and a strictly neoliberal discourse that focuses on modernization through economic (and technological) development.


23.2 Organ Shortage as a Central Marker


The issue of organ shortage arose at a particular moment in history, following the growing practice of organ transplantation from the 1960s onwards.2 To augment the number of available organs, advancements in organ transplant technology are eagerly sought: printing organs in 3D,3 growing kidneys, nanotechnology, and so on. In such a neoliberal account, organ shortage and the ethical dilemma of finding good solutions is seen as a temporary problem that will cease to exist once a limitless amount of organs can steadily be produced. It downplays the cost of implementing such technologies, as well as foreseeable problems that can be expected with their implementation and distribution. In the meantime, in Euro-American countries, the introduction of a new definition of death—brain death—and the harvesting of organs from brain dead patients contributed to countering the shortage of organs.4 India, a country that shares the concern of organ shortages, introduced the Transplantation of Human Organ Act in 1994 in order to set up a cadaver donor program. Yet, there are some major disparities in such programs that seem to be accepted worldwide.5 A report from the World Health Organization presents the following deceased donor numbers: 20.7 per million in the USA, 15.9 in Europe, 2.6 in South America and 1.1 in Asia in 2000.6


23.3 The Transplantation of Human Organs Act


Bioethics is cast in Universalist terms, looking for principles that hold true everywhere. These ethical principles favor the values of a particular Euro-American white middle-class.7 Following the example of Europe and America, the Transplantation of Human Organs Act (THOA) aimed to implement a definition of brain death and a practice of cadaveric organ harvesting in Indian society in order to increase organ supply. Indirectly, it sought to eradicate organ sale. The logic of the THOA was that by increasing the supply of organs by harvesting organs from the brain dead, the demand for organs would be met, and hence the prices that render illegal organ sale so attractive would drop.8 I will consider how this logic has worked in practice.


23.3.1 The Supply Side


The success of the THOA discouraging organ sale significantly depends on an actual rise in cadaveric organ procurement. It is striking that 18 years after the implementation of the THOA, there have been relatively few cadaver donations. In India, a mere 0.05 per million of the population are brain dead donors.9 Among cadaveric organ transplantations done over a period from 1995 to 1999, 141 transplants took place in Chennai, the capital of Tamil Nadu, as compared to 60 in Delhi, and 21 in Mumbai. In other cities, Varanasi for example, there are no cadaveric organ retrievals happening at all; only living donations are allowed. While, in terms of size and magnitude of the city, it might be more honest to compare numbers in Chennai with numbers in Lucknow, the capital of Uttar Pradesh, it became apparent that even in Lucknow only four cadaver organ retrievals took place while I was doing my research (P.C. 05/03/ 2011). Given its cadaver donation numbers, Tamil Nadu is said to be “at the forefront in India” (Shroff et al. 2007).

The pronounced interregional differences have a complex set of related causes, of which I will mention two. First, Chennai immediately moved on to include multi-organ harvesting. Second, Tamil Nadu has more infrastructural and administrative support available to medical care as compared to other regions. Yet, during my fieldwork I found that cultural attitudes regarding death and the ritualized handling of decaying bodies help explain why a widespread acceptance of cadaveric organ harvesting and transfer in India is problematic and why regional differences are as blatant as they are.10 In the context of this chapter I can only touch on a few of these cultural attitudes.

In India, a gift is seen as potentially poisonous and harmful,11 especially when gifts are given anonymously as prescribed by universalistic bioethics. Indian gifts can be considered a context for a transmission of “spirit” to occur (Laidlaw in Copeman 2011). Food, clothing, and body parts are especially powerful media for the transmission of bio-moral qualities.12 Considering that certain castes are considered to be more “polluting” than others, gifts are not easily given across caste boundaries. The risk of pollution is annihilated when a payment is made in exchange for the gift: payment cancels out the wings of indebtedness on which pollution travels. From this perspective, organ sale offers a comparative cultural benefit over organ donation.13 A similar risk is present for an organ donor. He or she becomes responsible for the karma of actions performed by the recipient whose life was saved. Secondly, obtaining organs from the bodies of the dead interferes with a cultural attachment to full-body cremation.14 A death ritual is enacted according to a blueprint of a regenerative ritual that operates in adherence to a sacrifice of the self to the cremation fire.15 Many informants fear that when organs are donated before the full body has been cremated, they will not have these organs in their next life. The use of organs from the dead is not without conflict either, since it mixes up categories of the pure and impure: the dead live on in the bodies of the living, which resembles the feared affliction of spirit possession.16 Furthermore, regional differences coincide with leanings towards Vaishnavite, Shaivaite or Shaktist streams of Hinduism, the latter being prevalent in the region of Tamil Nadu. All have different ways of looking at the body-mind-soul complex and prescribe different procedures to untie it. Tamil Nadu is a region where Christianity is more present, which influences the acceptance of practices of cadaveric organ donation in and of itself.

I elaborate on cultural aspects in more detail elsewhere.17 What is important is that cultural reasons help explain the unpopularity of the practice of cadaveric organ donation in India,18 regardless of the universalistic pretenses of the practice. As a result, the first important crack in the success of the THOA has been that the rise in organs available from brain dead patients has been minimal. This has consequences for the second aim of the Transplantation of Human Organs Act, namely, the goal to eradicate illegal kidney trafficking. It is estimated that an average of 2000 people sell their kidney annually,19 whereas there are only 50 cadaver donors per year.20


23.3.2 The Demand Side


With the THOA, by better meeting the high demand for organs, policy makers aimed to reduce the possibility of making lucrative financial gains on illegal organ markets and thus nip sales in the bud. The THOA thus rests on the assumption that cadaveric organ donation is suitable in an Indian context and, that organ shortage can be met, at least enough to bring about a significant drop in (mostly) kidney prices. Yet, as I pointed out, the increase in supply from cadaver organ donations has been minimal in India. Is there a ceiling to the need for organs? In this section, to get a better perspective on the gap between supply and demand, I scrutinize how the demand for organs has evolved.

If around 200,000 kidneys and 100,000 livers are needed every year in India, only 2–3 % will become available.21 The claimed demand can thus be expected to continue to grow with the availability of organs and the increasing acceptance of organ transfer as a procedure. Researchers have indeed argued that a higher availability of organs often coincides with an increase of referrals to waiting lists.22 The rising incidence of diabetes and hypertension further increases the rate of organ failures. Even in countries that have had successful cadaver donation programs, organs from this source have failed to meet an ever-increasing demand, which led to a resurgence of transplant programs that focus on living donors to complement the former.23 On top of an increasing national demand, the rise of medical tourists traveling to India to obtain a kidney further enhances the gap between supply and demand.


23.4 Systemic Difficulties with the THOA


Looking at the evolution on both the supply and the demand side, it becomes clear that the gap between both is increasing as opposed to decreasing. Yet the THOA is based on the reasoning that scarcity can be dealt with enough. Scheper-Hughes (2000, p. 198) urges us to reconsider what scarcity and need mean exactly, and how these terms and policies, by chasing their fulfillment, blind us in our capacity to see alternative ways to deal with issues of importance in the field of organ transplantation. The question is to what extent policies become ever more permissive to meet the insatiable demand.

Secondly, with the THOA, a market mechanism is applied to solve the issue of organ sale. Paradoxically, this reinforces the perspective of organs as commodified goods24 that are potentially fungible, i.e. subjective to buying and selling.25 The THOA, using a market logic to de-economize organ exchange, then paradoxically reinforces the economization of bioethics and biosociality.26

Lastly, policy discussions in India not only suffer from the pressure of a national organ shortage. The shortage of indigenous supplies is closely intertwined with international shortage. Networks of medical tourism, whereby recipients travel abroad to obtain organs through commercial transactions, bear witness to this.27 I will now look at how medical tourism is connected to economic development in the international discourse, and discuss how this influences the situation in India.


23.5 The International Context


Earlier we saw that India has about 0.05 cadaver donors per million.28Tharakan (2012) sees in this number, which is a mere fraction of the 25 cadaver donors per million in the United States, a sign that India “lags well behind other nations in organ donation rates.” The statement that a country “lags behind” reveals the pressure to be competitive in international rankings. In the first instance, competition rests on the number of organs harvested, and secondly, the extent to which these organs become available through the application of Universalist policy, in this case cadaveric organ donation. Competition among medical establishments and governments is even more obvious when it concerns efforts to attract medical tourists. Medical tourism is not only seen as an opportunity for development29 but also as a signpost thereof. It is considered a prime example of a market-driven, commercialized medical service and encouraged as a vehicle for economic development in lagging economies, such as India.30 In the international discourse as well then, a discourse of economic competitiveness penetrates medical discourse.


23.6 The Situation in India


The practice of medical tourism in India is proof for the national and international medical community that the nation has become a player on the international scene;31 that it has the infrastructure and know-how available to attract medical tourists from the developed world. The number of foreigners obtaining medical services in India has risen from 10,000 7 years ago to 450,000 a year today, while it is speculated that revenues have increased from US $ 350 million annually to US $ two billion in 2012.32

The slogan “First World Treatment at Third World Prices” (Smith 2012) illustrates that there is a split. Whereas medical tourism is seen as an opportunity to spur economic development, its success rests on its low prices and the minimal purchase power of a big part of the local population. India is a player in medical tourism, which reveals medical expertise and cutting-edge technology, yet these are available only to a select group of people, often foreigners. “The flow of organs follows the modern routes of capital: from South to North, from Third to First World, from poor to rich, from black and brown to white, and from female to male” (Scheper-Hughes 2000, p. 193). The split is between two developmental perspectives: one being development in the form of techno-scientific advancement, the other being development in the form of the democratization of human rights and a widespread access to medical services. Economic development through the former only makes a fickle trickle-down promise to the latter. India, while being home to the most innovative medical practices, is getting “bad credits” in the area of equity considerations (Smith 2012). As an example, I will discuss India’s kidney belt.


23.7 India’s Kidney Belt


The Tamil Nadu region in India is also called the kidney belt, in that it is renowned as an area of kidney trade. Villivakkam, a slum in Chennai (the capital of Tamil Nadu), obtained the nickname kidneyvakkam. So many of its inhabitants have sold a kidney that Cohen (1999) wonders what it would be like not to have done so. Communities such as Villivakkam are also called “one kidney communities” (The Hindu Publishers 1997).

Regions in India where medical tourism is most successful are those where the infrastructure for intensive transplantation practices is available, and where transplantation is more widely known among the public. These regions, because of their familiarity with practices of organ donation, are also areas where organ markets are mostly located. These markets often supply organs to medical tourism networks. This is not surprising, since the international discourse on medical tourism establishes the link between medical services and business thus inserting a factor of economic profitability into medical discourse, which compromises simultaneous attempts to discourage organ sale.

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Aug 1, 2017 | Posted by in General Surgery | Comments Off on India’s Kidney Belt and Medical Tourism: A Double-edged Sword

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